Wednesday, April 08, 2009

I Know Stuff Sometimes...

Yesterday, I got a faint glimmer of hope. Put a halt on the frantic searching for a resolution and finally got some answers....and some arguments. Felt a lot better after going thru all the options and potentials, from best case to worst. Spent almost three hours with Clover for the first meeting at the oncologist's office yesterday. Went thru all the treatment options, regiments, side effects/quality of life and pricing. His only doubt was both times she had the aspirated "biopsy" done, it was inconclusive. Could be lymphoma, could be infection. She's three weeks in, and other than two swollen lymph nodes, she has really has no other symptoms of this aggressive form of cancer. So he took her back and aspirated her again and looked at the slides himself. Still nothing. Fine. What else could it be? Well, could be a bacteria or fungal infection. Two strains that can mimic lymphoma and the test is $350 for both (testing for the bacteria and a broad spectrum fungal), or we can remove one of the lymph nodes for $600. That was the breaking point for me. Funds are limited and I'll be damned if they are all going to be used up on diagnostics. So, he suggested we go ahead with the chemo or steroids. Wait, I may not be a doctor but I'm not stupid. So, we start her on steroids suppressing her immune system, and chemo which destroys her immune system. Then if she does have either of the two infections she now has nothing to fight it off and she dies from something that could have been cured with antibiotics or anti-fungal meds. Antibiotics are $15, takes 5 days for the fungal test to come back for the ONE type of fungus found in this region. So, why don't we run that test and give her the antibiotics? The worst case there is the antibiotics don't work which means she doesn't have the infection, in that 5 days it takes for the other test to come back we should have an indication if the meds are working or not. Problem solved without wasting money that could be spent on treating her. More waiting, but at least we're working towards something. Another bright spot, is the chemo that would probably work best for her, since it doesn't seem to be aggressive, is one that I could actually afford (to a degree, I have gained assistance at this point).

Little bit of luck, little bit of hope, little bit of being argumentative and we're on our way...

No comments: